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Dear Prime Minister: “Please don’t delay action again, we’re counting on you”

by Patrick McGuire | Analysis

16 October 2020

35 comments 35 comments

Patrick and other Cancer Research UK ambassador visited Boris Johnson in February 2020.

Dear Prime Minister,

In February I had the great pleasure of being part of a small group of supporters from Cancer Research UK to visit you in Downing Street to celebrate World Cancer Day.

I left feeling extremely positive and elated after hearing you commit to the Government’s support to improving cancer outcomes in the UK and, in particular, to improving the early diagnosis of cancer. Clearly, since February we have seen some unimaginable changes and challenges due to the COVID-19 pandemic but this has shown us the huge importance of investing in research, public health and our NHS.

My passion for improving early diagnosis stems from my own experience of my wife, Pam, being misdiagnosed three times before she was eventually admitted to hospital through A&E. Pam was diagnosed with stage 4 incurable bowel cancer. She died 12 months later, aged just 52.

Pam taught English in a Secondary school and had a great love of literature. There was nothing she enjoyed more than spending time as a family with our two children. She had a great sense of fairness and justice along with a wicked sense of humour and great love of life, which tragically was taken from her too soon.

Pam’s death motivated me to volunteer for Cancer Research UK and campaign for better outcomes to stop others from having to go through the same devastating experience.

I’ve found it heartening to see the progress we’ve made it recent years. Back when I was a teenager in the 1970’s, only a quarter of people diagnosed with cancer survived 10 years or longer. Now, it’s just over half – but it could be so much better. Every day, around 450 people die from cancer. On 16 March 2007, one of those people was Pam. These numbers are not inevitable.

The Comprehensive Spending Review is an opportunity for a cancer reset to truly build back better and fulfil the Government’s existing commitments. We’re not asking for anything new, but simply for your Government to follow through on its own manifesto commitments, including to “increase cancer survival rates” and “boost early cancer diagnosis”. The NHS Long Term Plan makes a commitment to detect 75% of cancers at an early stage by 2028, now only 8 years away.

When I heard of these commitments, I thought of Pam. If she had been diagnosed at an early stage, she would have had 90% chance of survival, but as she was diagnosed very late, she had less than a 10% chance. Although we don’t see such numbers on our daily news bulletins many cancer patients are dying every day who could be saved. As of yet, no concrete steps have been made towards these ambitions.

I know now that millions of people are in a screening and testing backlog, which means thousands are missing out on vital early diagnosis and sadly, dying unnecessarily. From my own experience, I know the terrible strain as you wait between tests and diagnosis. The uncertainty, the fear, the dread and that ultimate feeling of losing control and helplessness.

Many more statistics could be quoted but what should motivate us even more is the fact that behind every statistic there is a real person, a real family going through devastating and life changing experiences. Pam had plans to go travelling with me in her retirement, but these were never realised. She never got to see her son graduate; she never attended the weddings of her son or daughter and more recently she never experienced the joys of seeing her 3 grandchildren.

Put simply, this is about saving lives. It’s about more couples spending longer together, about families sharing those special occasions together, about grandchildren being spoiled by grandparents. It’s about people and about trying to ensure that more people survive and live well with cancer.

I’m regularly inspired by the many nurses, doctors, clinicians, scientists and researchers with their passionate commitment to improve cancer outcomes. Along with our political leaders that is such a powerful force, making a difference and transforming lives. I believe with the NHS and our incredible research, the UK could and should be the best in the world when it comes to cancer survival.

Hopefully one day we’ll be able to meet again to mark World Cancer Day as a disease of the past, and you, as Prime Minister who took steps toward this future. I’m sure that is a world we all want our children and grandchildren to grow up in.

We’ll be looking to you to fulfil the commitments made in your manifesto – to provide the NHS cancer staff and life-saving medical research with the funding it needs in the upcoming Spending Review so that more lives can be saved.

Together, we can beat cancer. Mr Johnson, please don’t delay action again, we are counting on you.

Thank you.

Patrick McGuire

PS: You may remember that I wasn’t the only one there that day in February. There was a group of us – cancer survivors, researchers, campaigners, coming together that day to speak of the change we needed to see. Here are some stories from others who you met with, but you know there are millions of others too.

Lesley Daisley: “I don’t want anyone else to have to go through what Paul experienced”

Lesley and Paul

Lesley and her husband Paul Daisley.

My husband Paul Daisley, the late MP, died at the age of 45, after his bowel cancer was missed at the early stages. This resulted in 2 years of multiple operations, months in various ICU’s, stomas, pain, dashed hopes and a terminal diagnosis 6 months before his death. Now due to the bowel cancer screening programme, introduced over the last 20 years, so many more people are still here, with their loved ones. It is just so important that these programmes are continued and expanded to cover a wider cohort of people.

I do not want anyone else to have to go through what Paul experienced. He had so much to live for and was just starting out on his new adventure as a MP.

Over the 17 years since his death, the information available on and the awareness of cancer has increased so much. People are now much more willing to talk about it.  It is no longer a taboo subject.  We need this openness to be supported by the early diagnosis programmes across the full range of cancers. We all need to fight for improved survival rates and quality of life for cancer patients.

Nicola Boyd: “Cancer isn’t waiting for us to get back on track, we need to act now”

Delaying a cancer diagnosis can be the difference between survival and saying goodbye to your loved ones. Knowing that my friend could have had a different prognosis as they waited for their palliative care, lying in a hospital corridor was a heart-breaking crisis that could have been easily avoided. An early diagnosis supported by a strong NHS workforce could have given us a very different outcome.

Catching cancer early brings hope to people facing a daunting diagnosis and can provide the chance of the best possible treatment and outcomes. Those working in the NHS helping people through their journey with cancer are incredible, but it’s time to stop taking advantage of their altruism and ensure the workforce is fully staffed and equipped to beat cancer. Cancer isn’t waiting for us to get back on track, we need to act now.

Karen Harrison: “I know how important it is to have enough staff to help families facing cancer”

Karen and her son Josh.

As a mum of a child with cancer, I know how important it is to have enough staff there to help families facing cancer. Josh had years of treatment after he was diagnosed with Wilms tumour just before his second birthday. His treatment lasted for a year and a half. He needed chemotherapy, followed by 2 operations to remove one of his kidneys and part of his lung, then radiotherapy and more chemotherapy.

Josh is 10 now, and we know how lucky we are that he is doing well thanks to cancer research and the NHS staff who treated him. We want to help other families going through treatment – and making sure they have enough staff to treat them is vital.”

Tony Selman: “My wife died of oesophageal cancer, had the diagnosis been earlier she might be alive today”

In my lifetime I have seen many relatives, friends and acquaintances die of cancer, including my wife Marian and my sister. I have myself been diagnosed and successfully treated for cancer. I know the utter fear and misery that a diagnosis of cancer brings, and as a scientist I know that cancer is beatable if adequate resources are used, and it is for these reasons that I campaign relentlessly on cancer.

My wife died of oesophageal cancer, had the diagnosis been made earlier she might be alive today. Late diagnosis is responsible for the loss of many lives to cancer and only research and adequate NHS staff funding will stop the disease in its tracks.

Effie Grant: “Christmas was cancelled when my sister was diagnosed with cancer”

Effie (right) and her sister.

December 2016, Christmas was cancelled when my sister Jacqui was diagnosed with stage 3 colorectal cancer. The shock and devastation – raw. She went on to have several surgeries and battle infections. She was also highly spirited though, when she lost her hair and we joked on what colour to dye what was left. In the end she tried a combination of radiotherapy, immunotherapy and a targeted drug, theoretically set to work. The reality was it was too late to work and sadly she passed 17 April 2018 leaving us, a husband and 2 young teenagers.

My last conversation with her, she was on a ventilator. Watching every struggle to breath was excruciating. Had she been diagnosed earlier, I strongly believe she’d be here today. It’s imperative to fund needed research and train staff for early diagnoses to afford people the best chances at survival. I earnestly plead with you to do the needful in this regard.


    Comments

  • Maggie
    2 November 2020

    It’s good to hear about the journeys many families make down the cancer pathway and how much still needs to be done, we must not stop funding for cancer we must do the very best for all those people who have fought this battle.

  • Amanda Whitlam
    25 October 2020

    My Mum and Dad died of cancer and now my brother has had a recent diagnosis – he went in with suspected COVID-19 but sadly has lung and liver cancer and been given 3 -6 months left to live. Cancer affects so many people. I would like to see more research in to this disease but am aware that we are all human – we will die of something, one day. However, often that day is too soon for some. Please research in to early research.

  • Liz calder
    25 October 2020

    It’s heartbreaking to hear these stories when I too have lost my sister, just days ago We were so hopeful but she has been taken too soon. Early diagnosis and more joined up research to help all cancers is the future and we need to start living up to having the best heath service and that needs continued investment. I really hope your letter has the impact it deserves and lives are saved. Thank you so much for your dedication and commitment in leading the way.

  • Heather Shields
    25 October 2020

    My brother was also diagnosed too late with prostate cancer, it was missed and he could have had an operation and lived to see his two teenage children live their lives. It seems inconceivable that in 2020 only 50% are diagnosed in time. I feel very strongly this should be addressed as soon as possible.

  • Patricia Nichols
    25 October 2020

    Very moving and makes a strong point that we must keep fighting to beat Cancer

  • Alex Y
    25 October 2020

    I hope Mr Johnson will read Patrick’s letter and act on it to provide the NHS with the resources they need and not to delay diagnosis and life saving treatment and research any further.
    I lost my father to bowel cancer in 1996 when I was 19. He had been unwell for a while and went to the Doctor several times, he became more and more unwell until he was rushed to hospital in terrible pain where he was finally diagnosed with advanced Bowel cancer that had now spread to other areas of the body, this was in the May of that year and although he had treatment it was much too late and sadly passed in the August only 3 months later. This was 24 years ago but a lot more is known about Bowel cancer now and it is so important that we have the resources for people to get early diagnosis and treatment to have every possible chance, so please do not cut these life lines.

  • Margaret Lineham
    25 October 2020

    DEAR Boris.. having yourself recently been so unwell the joy of recovery must still be very much in your mind. Please give that same opportunity to those who are urgently waiting for testing or continuation of treatment for cancer. Thank you.

  • Keith
    24 October 2020

    It was very sad to read the letter from Patrick. Why isn’t the Government spending more money on cancer treatments,equipment and research. There should not be delays in diagnosis , no excuse even with this pandemic.

  • Nelli Andriukaityte
    24 October 2020

    Yes, Patrick’s letter gives nice example how much cancer patients need attention and support now as ever before!

  • Jane White
    24 October 2020

    I have Grade 3 breast cancer because my mammogram was put back because of Covid. Like many other women I now face chemotherapy because an early diagnosis was sadly missed. Don’t let more women face my current fear that I haven’t been treated in time.

  • Dora James
    24 October 2020

    I think the prime minister should consider having an early diagnosis of cancr in view when he does his spending review

  • Jane Mellors
    24 October 2020

    Please read Patrick’s letter. I lost my father to bowel cancer, due to lengthy delays in diagnosis. He had to wait a year to have the cancer diagnosed, by which time it had spread. Such a waste of life could have been avoided. Act now Mr Johnson!

  • Joan
    23 October 2020

    Prime Minister please make this your priority. I have lost too many members of my family from cancer. Every person should have an early diagnosis and then maybe more lives would be saved

  • Valerie
    23 October 2020

    Very moving. We must do all we can to support Cancer Research so that early diagnoses can be made. It will make such a positive difference to so many families.

  • David Cussell
    23 October 2020

    Please read and act on it

  • Lynn
    23 October 2020

    Please read and act on this letter Prime Minister

  • KJJ
    23 October 2020

    Well done Patrick and everyone else involved in this cause. Early diagnosis is essential in the fight against this disgusting disease. Keep up the amazing work folks.

  • Geoffrey Thompson
    22 October 2020

    All the experiences from the recorded people show than when cancer is attacked early it can be defeated,Please carry on your fight.

  • Karen Hargreaves
    22 October 2020

    So many heartbreaking stories the government must do more to help with early diagnosis

  • Karen
    22 October 2020

    So many heartbreaking stories the government must take action

  • Ann Morford
    22 October 2020

    The letter to the Prime Mnister is very good in that it is strong and to the point and having lost my husband to throat cancer I can fully comprehend how others feel. I am just angry that cancer treatment at present is being put on the back burner because of Covid. It is disgraceful.

  • Antoinette Bushell
    22 October 2020

    Definatly keep cancer patients and disabled people safe I have cerabel pulsey and i have being very well protected I live in an independant living block.of flats So we are all very well protected

  • Ann Heaney
    22 October 2020

    Please read Patrick’s letter and give the NHS all the resources they need to save more lives from this awful disease

  • Anita
    22 October 2020

    Please read and act on this letter .

  • JOHN RAMSDEN
    22 October 2020

    Life changing in a negative sense. Investment in early diagnosis could be life changing in a
    positive sense.My partner and I have been fortunate. Others,currently,may not be so.

  • Ruth Bennett
    22 October 2020

    Please read this letter and act on it, I lost my mother to cancer and the pain that causes to everyone is immense!

  • Alison Lamont
    19 October 2020

    Please read and act on this letter.

  • Besmira Selmanaj
    19 October 2020

    Please ready and act. Thank you

  • Rosemary Rycroft
    17 October 2020

    Please read & act on the letter from Patrick McGuire. Thank you

  • Karen Renshaw
    17 October 2020

    Maori actions are required regarding early diagnosis of Cancer. It’s a fatal disease which, if diagnosed sooner, would be able to allow greater research and save lives. Invest in the NHS to allow this to happen

  • Shiv Kumar mujral
    16 October 2020

    Please Patrick letter and see how important.

  • Gill Thorpe
    16 October 2020

    Early detection is paramount. Please ensure the NHS have the funding to offer this crucial service in all regions of the UK

  • Gill Thorpe
    16 October 2020

    Early detection is paramount. Please make sure the NHS is equipped to offer this service in all regions of the UK.

  • Gail Sharp
    16 October 2020

    After watching my father fight and lose his battle with cancer in his early 50s, and my uncle become bed-bound, and then die just before lock-down, I have to say that I wouldn’t wish it on my worst enemy. Even before lockdown, the NHS was stripped back to its bare bones. Covid-19 has shown that it is an essential service, and investment in time, effort & funds cannot be put to the back of the queue. The health of the nation and the health of the economy are intrinsically linked. What is really required as regards cancer, is a cure. It’s out there, but big pharma are blocking it. The only way to stop them blocking it, is for governments to get involved. Come on Boris, this is so important! 🙏

  • BA
    16 October 2020

    Prime Minister,

    I hope you’re recovering well from Covid.

    Imagine the tradegy it would have been for your family if the NHS hadn’t been there to look after you. I’m pleased you’re making a safe recovery….. However, some people can’t from cancer or mental illness as examples .. so please consider other patients as you were, who’s families are in despair…… who have lost loved ones and don’t want others to suffer the same agonising experience.

    I look forward to to hearing from you on how you might consider approaching this moving forward.

    Comments

  • Maggie
    2 November 2020

    It’s good to hear about the journeys many families make down the cancer pathway and how much still needs to be done, we must not stop funding for cancer we must do the very best for all those people who have fought this battle.

  • Amanda Whitlam
    25 October 2020

    My Mum and Dad died of cancer and now my brother has had a recent diagnosis – he went in with suspected COVID-19 but sadly has lung and liver cancer and been given 3 -6 months left to live. Cancer affects so many people. I would like to see more research in to this disease but am aware that we are all human – we will die of something, one day. However, often that day is too soon for some. Please research in to early research.

  • Liz calder
    25 October 2020

    It’s heartbreaking to hear these stories when I too have lost my sister, just days ago We were so hopeful but she has been taken too soon. Early diagnosis and more joined up research to help all cancers is the future and we need to start living up to having the best heath service and that needs continued investment. I really hope your letter has the impact it deserves and lives are saved. Thank you so much for your dedication and commitment in leading the way.

  • Heather Shields
    25 October 2020

    My brother was also diagnosed too late with prostate cancer, it was missed and he could have had an operation and lived to see his two teenage children live their lives. It seems inconceivable that in 2020 only 50% are diagnosed in time. I feel very strongly this should be addressed as soon as possible.

  • Patricia Nichols
    25 October 2020

    Very moving and makes a strong point that we must keep fighting to beat Cancer

  • Alex Y
    25 October 2020

    I hope Mr Johnson will read Patrick’s letter and act on it to provide the NHS with the resources they need and not to delay diagnosis and life saving treatment and research any further.
    I lost my father to bowel cancer in 1996 when I was 19. He had been unwell for a while and went to the Doctor several times, he became more and more unwell until he was rushed to hospital in terrible pain where he was finally diagnosed with advanced Bowel cancer that had now spread to other areas of the body, this was in the May of that year and although he had treatment it was much too late and sadly passed in the August only 3 months later. This was 24 years ago but a lot more is known about Bowel cancer now and it is so important that we have the resources for people to get early diagnosis and treatment to have every possible chance, so please do not cut these life lines.

  • Margaret Lineham
    25 October 2020

    DEAR Boris.. having yourself recently been so unwell the joy of recovery must still be very much in your mind. Please give that same opportunity to those who are urgently waiting for testing or continuation of treatment for cancer. Thank you.

  • Keith
    24 October 2020

    It was very sad to read the letter from Patrick. Why isn’t the Government spending more money on cancer treatments,equipment and research. There should not be delays in diagnosis , no excuse even with this pandemic.

  • Nelli Andriukaityte
    24 October 2020

    Yes, Patrick’s letter gives nice example how much cancer patients need attention and support now as ever before!

  • Jane White
    24 October 2020

    I have Grade 3 breast cancer because my mammogram was put back because of Covid. Like many other women I now face chemotherapy because an early diagnosis was sadly missed. Don’t let more women face my current fear that I haven’t been treated in time.

  • Dora James
    24 October 2020

    I think the prime minister should consider having an early diagnosis of cancr in view when he does his spending review

  • Jane Mellors
    24 October 2020

    Please read Patrick’s letter. I lost my father to bowel cancer, due to lengthy delays in diagnosis. He had to wait a year to have the cancer diagnosed, by which time it had spread. Such a waste of life could have been avoided. Act now Mr Johnson!

  • Joan
    23 October 2020

    Prime Minister please make this your priority. I have lost too many members of my family from cancer. Every person should have an early diagnosis and then maybe more lives would be saved

  • Valerie
    23 October 2020

    Very moving. We must do all we can to support Cancer Research so that early diagnoses can be made. It will make such a positive difference to so many families.

  • David Cussell
    23 October 2020

    Please read and act on it

  • Lynn
    23 October 2020

    Please read and act on this letter Prime Minister

  • KJJ
    23 October 2020

    Well done Patrick and everyone else involved in this cause. Early diagnosis is essential in the fight against this disgusting disease. Keep up the amazing work folks.

  • Geoffrey Thompson
    22 October 2020

    All the experiences from the recorded people show than when cancer is attacked early it can be defeated,Please carry on your fight.

  • Karen Hargreaves
    22 October 2020

    So many heartbreaking stories the government must do more to help with early diagnosis

  • Karen
    22 October 2020

    So many heartbreaking stories the government must take action

  • Ann Morford
    22 October 2020

    The letter to the Prime Mnister is very good in that it is strong and to the point and having lost my husband to throat cancer I can fully comprehend how others feel. I am just angry that cancer treatment at present is being put on the back burner because of Covid. It is disgraceful.

  • Antoinette Bushell
    22 October 2020

    Definatly keep cancer patients and disabled people safe I have cerabel pulsey and i have being very well protected I live in an independant living block.of flats So we are all very well protected

  • Ann Heaney
    22 October 2020

    Please read Patrick’s letter and give the NHS all the resources they need to save more lives from this awful disease

  • Anita
    22 October 2020

    Please read and act on this letter .

  • JOHN RAMSDEN
    22 October 2020

    Life changing in a negative sense. Investment in early diagnosis could be life changing in a
    positive sense.My partner and I have been fortunate. Others,currently,may not be so.

  • Ruth Bennett
    22 October 2020

    Please read this letter and act on it, I lost my mother to cancer and the pain that causes to everyone is immense!

  • Alison Lamont
    19 October 2020

    Please read and act on this letter.

  • Besmira Selmanaj
    19 October 2020

    Please ready and act. Thank you

  • Rosemary Rycroft
    17 October 2020

    Please read & act on the letter from Patrick McGuire. Thank you

  • Karen Renshaw
    17 October 2020

    Maori actions are required regarding early diagnosis of Cancer. It’s a fatal disease which, if diagnosed sooner, would be able to allow greater research and save lives. Invest in the NHS to allow this to happen

  • Shiv Kumar mujral
    16 October 2020

    Please Patrick letter and see how important.

  • Gill Thorpe
    16 October 2020

    Early detection is paramount. Please ensure the NHS have the funding to offer this crucial service in all regions of the UK

  • Gill Thorpe
    16 October 2020

    Early detection is paramount. Please make sure the NHS is equipped to offer this service in all regions of the UK.

  • Gail Sharp
    16 October 2020

    After watching my father fight and lose his battle with cancer in his early 50s, and my uncle become bed-bound, and then die just before lock-down, I have to say that I wouldn’t wish it on my worst enemy. Even before lockdown, the NHS was stripped back to its bare bones. Covid-19 has shown that it is an essential service, and investment in time, effort & funds cannot be put to the back of the queue. The health of the nation and the health of the economy are intrinsically linked. What is really required as regards cancer, is a cure. It’s out there, but big pharma are blocking it. The only way to stop them blocking it, is for governments to get involved. Come on Boris, this is so important! 🙏

  • BA
    16 October 2020

    Prime Minister,

    I hope you’re recovering well from Covid.

    Imagine the tradegy it would have been for your family if the NHS hadn’t been there to look after you. I’m pleased you’re making a safe recovery….. However, some people can’t from cancer or mental illness as examples .. so please consider other patients as you were, who’s families are in despair…… who have lost loved ones and don’t want others to suffer the same agonising experience.

    I look forward to to hearing from you on how you might consider approaching this moving forward.