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  • Health & Medicine

Breaking down the new standards for cancer care proposed by NHS England

Lilly Matson
by Lilly Matson | Analysis

11 March 2022

16 comments 16 comments

An empty hospital hallway

Update August 2023

On 17 August 2023, NHS England announced the switch to the new standards of care described below. See the new updated article for our response to the changes, or visit our rolling article to find analysis of the latest performance again cancer waiting times standards. 


 

Cancer waiting times provide  data on the waiting times of people being seen by a specialist and treated for cancer by the NHS.  

These figures have been important in offering clear expectations of how long people being urgently referred for suspected cancer should wait to see a specialist for the first time and for all cancer patients to begin treatment. 

This week, NHS England published a report which has proposed shifts in cancer waiting times standards.  

In April last year, the NHS in England began reporting on a new measure called the Faster Diagnosis Standard (FDS). This was recommended in the 2015 cancer strategy as a way of measuring a part of the pathway that was previously not captured and had often been taking a long time; having tests, receiving the results and ultimately a diagnosis.  

And since October 2021, Trusts have been measured on this Faster Diagnosis Standard which requires that patients on certain cancer-related referrals are receiving a diagnosis, or having cancer ruled out, in 28 days.  

As currently proposed, the NHS has set a target for 75% of patients getting a cancer diagnosis, or having cancer ruled out, within 28 days of being urgently referred by their GP for suspected cancer, being referred because of breast symptoms, or having been picked up through cancer screening

For a few months, the FDS has been running alongside the cancer waiting times targets that have been around for a while.   

NHS England are now proposing that one of the cancer waiting times targets, the 2 Week Wait (2WW), which aims for people with suspected cancer to see a specialist within 14 days of being urgently referred by their GP or a cancer screening programme, is replaced by the FDS. 

The publication of the report kick-starts a 4-week consultation period which provides the opportunity for patients, clinicians, charities and the public to share their views on the proposed standards over the next month. 

We believe that the proposed changes are a big step in the right direction as they focus on tangible outcomes for cancer patients rather than processes. They could play an important role in driving improvements and capacity in diagnostic services. 

What’s changing?

There are currently 9 separate performance standards for cancer. The standards aim to streamline the current existing targets into 3 key targets: 

  • The 28-day FDS – People who have been urgently referred for suspected cancer, have breast symptoms, or have been picked up through cancer screening, have cancer ruled out or receive a diagnosis within 28 days. 
  • A 62-day referral to treatment standard – Patients who receive a cancer diagnosis after an urgent suspected cancer referral, referral for breast cancer symptoms, or via cancer screening should start treatment within 62 days of that initial referral. 
  • A 31-day decision to treat to treatment standard – Patients, regardless of how they came to be diagnosed with cancer, should receive their treatment within a month of a deciding to treat their cancer. 

Why do the old targets need to be replaced?

Right now, a key target  is for people with suspected cancer to see a specialist within 14 days of being urgently referred by their GP or a screening programme, often referred to as the 2WW target. However, this doesn’t set expectations for how long someone will wait to have any tests they need, for the test results to come back, and for them to be told whether or not they have cancer. 

Being referred for suspected cancer can be an anxious time and the 2WW target around seeing a specialist helped to ensure that many people got seen by a specialist quickly.  

However, seeing a specialist is only the first step, and many people with cancer need to have tests, and receive test results, and sometimes even further tests and test results in order to get a diagnosis.  

Before the introduction of the FDS, this important information wasn’t captured, meaning that no one had a clear idea how long it all took, and the targets were not providing an incentive to make this part of the cancer pathway go quicker. 

“The new Faster Diagnosis Standard is a more meaningful target than the current 2-week wait that will hopefully improve early diagnosis,” says Michelle Mitchell, our chief executive. 

Latest Cancer Waiting Times 

Many of the targets set by NHS England have not been met for some time. Figures released yesterday show that for January 2022 (amid winter challenges and a surge in the Omicron variant), the 2-week wait was met for just 75% of patients, despite the current target being set at 93%. The FDS, which is already being used by NHS England, also missed its 75% target, with 64% of patients being diagnosed or having cancer ruled out within 28 days of an urgent suspected cancer referral. 

“Despite the tireless work of NHS staff, performance against targets has again hit a record low. More people than ever before are facing unacceptably long waits for vital cancer tests and treatment,” says Mitchell. 

 “If all trusts met the 75% target, it would be an improvement to where we are now.”  

A more ambitious trajectory  

Cancer that’s diagnosed at an early stage, when it isn’t too large and hasn’t spread, is more likely to be treated successfully.  

This is why committing to ambitious targets for the time it takes for cancer to be diagnosed is so important.  

While the FDS is a step in the right direction, in the longer term we hope that NHS England will set the FDS on a more ambitious trajectory, raising the target to the 95% target initially proposed in the 2015 Cancer Strategy for England, to ensure even more patients will receive a timely diagnosis.  

Even to achieve the proposed standard of 75% for FDS, many patients will need to be seen by a specialist much sooner than 14 days, but without investment to grow the workforce and clarity about how the chronic workforce shortages are going to be addressed, this is going to be very difficult for Government and the NHS to deliver. 

If these targets are to meaningfully contribute to the vision to improve cancer outcomes in Health Secretary Sajid Javid’s upcoming 10-year plan for cancer, it is now up to the Government to provide the extra investment they have promised to expand the NHS workforce.  

“We recognise the target was set lower because of a shortage of specialists critical to diagnosing cancer across the NHS. The Government must provide the extra investment they have promised to grow the NHS workforce,” says Mitchell. 

“Every moment of delay risks more people waiting for diagnosis and treatment.” 

Although there are some challenges in the NHS right now, if you notice any changes to your health that are not normal for you or aren’t going away, tell you doctor.


    Comments

  • Dave
    26 January 2023

    Not happening is it ? From GP to Urology for Cystoscopy just under the two week wait (nice) @Cystoscopy told tumours to bladder and chances it was cancer(told caused from being an ex smoker). Cystoscopy to first treatment TURBT, catheter fitted, and surgery to unblock kidney yesterday wait would of been TWO MONTHS AND TWO WEEKS !!!. Unfortunately it’s now going to be longer wait as after attending my appointment for surgery and waiting in a waiting room sat on uncomfortable chair for 10 hours (no food /no drink) was told my surgery was cancelled. So my wait goes on and chances of survival worsen.

  • Sam
    20 July 2022

    I am 114 days in to being told I have breast cancer. Still not meeting with oncology to discuss my chemotherapy. Sad thing is, they found abnormalities in my left armpit and neck on the PET scan. No matter how much you shout and scream it gets you no where. It is a very sad situation

  • Carolyn Brooks
    3 July 2022

    I think this sounds like a positive step. My husband experienced 2 major errors by the GP which resulted in him not being referred for the 2WW and a clerical error meant a referral to Urology was not marked urgent. This resulted in an 18 week delay until after much nagging from me he paid for private diagnosis. 2 large bladder tumours later and then back to NHS where the 2WW wait was breached. I had to bang on lots of doors (I had worked in the NHS) and throw everything I had at the system and makes loads of noise. After a TURBT and three weeks on he gets the results this week. Sometimes the system stutters at primary care level. Whatever supports a smooth and timely care pathway gets my vote.

  • Johanna Lerchenfelder
    3 July 2022

    Looks good on paper, sadly reality is different story

  • Miriam Swainston
    2 July 2022

    The real issue is the government being willing to fund the improvements including taking care of the staff they have and recruiting new staff.

  • Michael side
    2 July 2022

    My partner has had breast cancer for 5 yrs secondary, it’s taken over 4 months from recognised progression to get a new treatment she has now died

  • Joyce Ord
    1 July 2022

    I have brain cancer and if it was diagnosed earlier I would have a much better life span I now have scans but the last one took 6 weeks before I knew the results and I do believe my doctor should have picked up on it when I was there and it would have been able to remove it all

  • Sheila
    1 July 2022

    We all know that when cancer is detected and treated quickly the outcomes are much improved. We must fight to make this happen. This plan appears to be a step in the right direction and hopefully the Government’s 10 year cancer plan will increase NHS resources so that more patients survive.

  • LOUISE FISHER
    30 June 2022

    A wait of a month is to long. I was diagnosed with head and neck cancer stage four January 2020, within two weeks I Had my cancer removed, A longer wait and I would not be here, Three weeks post surgery I began 6 weeks of daily radiotherapy with chemo. early diagnosis is essential.

  • Sally Flannigan
    30 June 2022

    My cancer was dealt with very quickly but that’s no telling you about the things you go through afterwards and no follow up!

  • Lesley Millward
    21 May 2022

    I think it should be ruled by the government to take a minimum payment of every employer in the country (working or not) from their salary I think it’s a minor sacrifice & therefore the money would be there to fight this awful disease

  • Nicola
    19 May 2022

    So important. When my mums cancer had spread and they suggested re-doing a biopsy, she was told there would be up to a 6 week wait before getting the results. It wasnt quite that long but still 4 weeks and then the treatment options had to be discussed before getting started. Not the first time results have been delayed either. Took 3 months last year…because the consultant didnt even look at them! No surprise the cancer had spread. Changes need to happen and need to happen fast.

  • Fiona
    19 May 2022

    My own experience tells me that this is entirely possible. I went for routine bowel screening on 3 January 2019; I had a cancer diagnosis 6 days later, a CT scan to check for spread within two weeks and surgery to remove the tumour (which turned out to be stage 3 and the cancer was present in 3 lymph nodes – I had had no symptoms whatsoever and was 55 years old at the time) on 4 February – so not only a diagnosis within 28 days but the start of treatment in roughly the same time. Fantastic care from the Queen Elizabeth Hospital in Gateshead. A three month course of chemo started at the end of March as a precaution and so far, three years on, monitoring scans and blood tests have shown no sign of disease. Funding is crucial – its hugely worrying that the screening which probably saved my life has been scrapped because of lack of funding with nothing as yet to replace it.

  • Shaz
    18 May 2022

    Brilliant if can be achieved, I got diagnosed with colorectal cancer by going private after seeing consultant in NHS, because I had a private health insurance from work! Regretfully this didn’t pick up it had spread due to the years of misdiagnosis by my GP. Had 4 tumours on liver and 1 in my lung, but after nearly 3 years of treatments on NHS, I’m now fine. Been donating to Cancer Research and Macmillan’s for nearly 30 years, after friends death!

  • Angela garrathy
    15 March 2022

    To wait a month , not knowing if you have cancer is too long. I was seen quickly within the 2WW , then the treatment plan of 2.5 years was discussed & started within 6 weeks

  • E.Lewis
    11 March 2022

    From what I have read I think this will be beneficial to get swift and early diagnosis. I believe my cancer diagnosis was delayed due to the amount of time it took to get scans and other procedures booked in and reported on.

    Comments

  • Dave
    26 January 2023

    Not happening is it ? From GP to Urology for Cystoscopy just under the two week wait (nice) @Cystoscopy told tumours to bladder and chances it was cancer(told caused from being an ex smoker). Cystoscopy to first treatment TURBT, catheter fitted, and surgery to unblock kidney yesterday wait would of been TWO MONTHS AND TWO WEEKS !!!. Unfortunately it’s now going to be longer wait as after attending my appointment for surgery and waiting in a waiting room sat on uncomfortable chair for 10 hours (no food /no drink) was told my surgery was cancelled. So my wait goes on and chances of survival worsen.

  • Sam
    20 July 2022

    I am 114 days in to being told I have breast cancer. Still not meeting with oncology to discuss my chemotherapy. Sad thing is, they found abnormalities in my left armpit and neck on the PET scan. No matter how much you shout and scream it gets you no where. It is a very sad situation

  • Carolyn Brooks
    3 July 2022

    I think this sounds like a positive step. My husband experienced 2 major errors by the GP which resulted in him not being referred for the 2WW and a clerical error meant a referral to Urology was not marked urgent. This resulted in an 18 week delay until after much nagging from me he paid for private diagnosis. 2 large bladder tumours later and then back to NHS where the 2WW wait was breached. I had to bang on lots of doors (I had worked in the NHS) and throw everything I had at the system and makes loads of noise. After a TURBT and three weeks on he gets the results this week. Sometimes the system stutters at primary care level. Whatever supports a smooth and timely care pathway gets my vote.

  • Johanna Lerchenfelder
    3 July 2022

    Looks good on paper, sadly reality is different story

  • Miriam Swainston
    2 July 2022

    The real issue is the government being willing to fund the improvements including taking care of the staff they have and recruiting new staff.

  • Michael side
    2 July 2022

    My partner has had breast cancer for 5 yrs secondary, it’s taken over 4 months from recognised progression to get a new treatment she has now died

  • Joyce Ord
    1 July 2022

    I have brain cancer and if it was diagnosed earlier I would have a much better life span I now have scans but the last one took 6 weeks before I knew the results and I do believe my doctor should have picked up on it when I was there and it would have been able to remove it all

  • Sheila
    1 July 2022

    We all know that when cancer is detected and treated quickly the outcomes are much improved. We must fight to make this happen. This plan appears to be a step in the right direction and hopefully the Government’s 10 year cancer plan will increase NHS resources so that more patients survive.

  • LOUISE FISHER
    30 June 2022

    A wait of a month is to long. I was diagnosed with head and neck cancer stage four January 2020, within two weeks I Had my cancer removed, A longer wait and I would not be here, Three weeks post surgery I began 6 weeks of daily radiotherapy with chemo. early diagnosis is essential.

  • Sally Flannigan
    30 June 2022

    My cancer was dealt with very quickly but that’s no telling you about the things you go through afterwards and no follow up!

  • Lesley Millward
    21 May 2022

    I think it should be ruled by the government to take a minimum payment of every employer in the country (working or not) from their salary I think it’s a minor sacrifice & therefore the money would be there to fight this awful disease

  • Nicola
    19 May 2022

    So important. When my mums cancer had spread and they suggested re-doing a biopsy, she was told there would be up to a 6 week wait before getting the results. It wasnt quite that long but still 4 weeks and then the treatment options had to be discussed before getting started. Not the first time results have been delayed either. Took 3 months last year…because the consultant didnt even look at them! No surprise the cancer had spread. Changes need to happen and need to happen fast.

  • Fiona
    19 May 2022

    My own experience tells me that this is entirely possible. I went for routine bowel screening on 3 January 2019; I had a cancer diagnosis 6 days later, a CT scan to check for spread within two weeks and surgery to remove the tumour (which turned out to be stage 3 and the cancer was present in 3 lymph nodes – I had had no symptoms whatsoever and was 55 years old at the time) on 4 February – so not only a diagnosis within 28 days but the start of treatment in roughly the same time. Fantastic care from the Queen Elizabeth Hospital in Gateshead. A three month course of chemo started at the end of March as a precaution and so far, three years on, monitoring scans and blood tests have shown no sign of disease. Funding is crucial – its hugely worrying that the screening which probably saved my life has been scrapped because of lack of funding with nothing as yet to replace it.

  • Shaz
    18 May 2022

    Brilliant if can be achieved, I got diagnosed with colorectal cancer by going private after seeing consultant in NHS, because I had a private health insurance from work! Regretfully this didn’t pick up it had spread due to the years of misdiagnosis by my GP. Had 4 tumours on liver and 1 in my lung, but after nearly 3 years of treatments on NHS, I’m now fine. Been donating to Cancer Research and Macmillan’s for nearly 30 years, after friends death!

  • Angela garrathy
    15 March 2022

    To wait a month , not knowing if you have cancer is too long. I was seen quickly within the 2WW , then the treatment plan of 2.5 years was discussed & started within 6 weeks

  • E.Lewis
    11 March 2022

    From what I have read I think this will be beneficial to get swift and early diagnosis. I believe my cancer diagnosis was delayed due to the amount of time it took to get scans and other procedures booked in and reported on.